Looking to place my kids to play some kind of sport was difficult for me, what if they don’t like .  But we decided to just give it a try .  So we signed them both for Challenger little league baseball.  We went to our very first game on Friday ( first for even my husband and me).  I was surprised of  how much they enjoyed the game.  The coach was amazing in understanding  of all the kids.  Everyone was given a chance to bat and pitch.  Hitting the ball and getting to first base , you could see how proud both my kids were.    I am glad we decided to give it a try.  I expected screaming and crying and all the good stuff that goes with it, but it went  a lot better then we thought.  Giving them a chance to experience things rather then asking them or assuming they may not like it, was a good decision. One thing  is for sure the impossible CAN be possible, sometimes.

Taking my daughter grocery shopping is not so fun, with all the candy, soda sitting all right there at the check-out stand. She would cry for her candy which I hate buying. But this trip to the store was so funny. We had done shopping and was paying. Then all of a sudden she started to scream and cry, I thought oh no the candy, yeah I gave in and gave it to her. But she said no and I could not figure why she was crying . She pointed to the bags in the cart, so I carried her over and looked in the bags to see what she wanted. I could not believe she was crying for her string cheese. Yes string cheese I could not believe it. But at the same time I was so proud she wanted her cheese instead of the candy. It is good to see that she looks up to her brother, he had gotten her started with cheese. I feel so proud to see they are learning from each other. Now I just hope they only learn the good habits. I know wishful thinking, but I can hope.

I was having my 4 month ultra sound done when the Dr looked at me and said ” I think there is something wrong”. My heart dropped to the floor but been brave asked what is wrong. Dr said, She might not be able to move from the waist down and needed to do an intensive ultra sound to be sure. Did all the ultra sounds and it all confirmed it. I cried and cried but knew I had to be strong her her. Getting to know all that was to be known about Caudal Regression Syndrome (CRS) and accepting the worse. Thinking of how I am going to do this, having a son who has autism and having a baby with CRS. When I looked at the monitor and just seeing her, I knew I can do this. Scared out of my mind of not knowing what will happen. But when she was born, nothing seemed to matter. Seeing her face for the first time, I knew I can do this.

When she came home, my son became a big brother and keeping a watchful eye on her all the time. I wanted to do everything for her, did not want her to feel any pain. But I knew I had to think with my head and not just my heart. Sitting in front of her and waited for her to figure out a way she has to move to get to me, was the best thing ever. She worked her way to me and I saw that joy in her face of “I did it”. That gave me the courage to let her find her way to do things. And today she has, she has such a will power to do things her way, does not like to be helped unless she really needs it. And she loves her freedom of moving with her cool wheelchair.

I am happy she is who she is and she is not her disability…

Sometimes, the little simple things makes my children happy. When my little one came from school with a bead bracelet she made for me and put it on for me. Her face beamed with joy as she waited for my reaction. I looked at her and said thank you. For the rest of the day she kept looking to see if I still have it on, and the joy returns to her face. When I look at it, it brings a smile to my face and I can see her face beaming with pride.

Going to the pool used to a dreaded feeling for me. My daughter who is in the wheelchair is unable to swim but given the chance she shines and surprises me. See, she got into her ring and swam. Yes, she paddled with her hands and was on the other end of the pool. Shocked I was, but now I know given the opportunity she will shine. One thing is for sure that Children with Limitations are Children Without Limits.