Two Worlds As One - Embrace all disabilities, share life, love » General Health

Letting go

Sita — Fri, 17 Jul 2009 00:50:00 +0000

I always thought going to the county fair would be a challenge with my son. As long as someone is sitting next to him he probably would be fine and that would be the only way he would sit through the ride. I was scared of him trying to get off the rides while in mid motion. His dad went with him on the first ride , all went well. On the second ride, his dad let him go alone, to honest I was not happy at all, but I bit my tongue and just prayed everything would be fine. I could not wait for the ride to be over, and it was. I was over joyed and at the same time felt not needed. But as I watched him ride more rides on his own, I noticed something he looked so proud. It was good seeing that look on his face. I know I have to let him spread his wings and become more brave and independent. One thing is for sure, he might need me less but I always let him know that we will always be there for him whenever he needs us.

Cheese over candy

Sita — Thu, 16 Jul 2009 13:27:00 +0000

Taking my daughter grocery shopping is not so fun, with all the candy, soda sitting all right there at the check-out stand. She would cry for her candy which I hate buying. But this trip to the store was so funny. We had done shopping and was paying. Then all of a sudden she started to scream and cry, I thought oh no the candy, yeah I gave in and gave it to her. But she said no and I could not figure why she was crying . She pointed to the bags in the cart, so I carried her over and looked in the bags to see what she wanted. I could not believe she was crying for her string cheese. Yes string cheese I could not believe it. But at the same time I was so proud she wanted her cheese instead of the candy. It is good to see that she looks up to her brother, he had gotten her started with cheese. I feel so proud to see they are learning from each other. Now I just hope they only learn the good habits. I know wishful thinking, but I can hope.

Two worlds as One

Sita — Sun, 12 Jul 2009 22:57:00 +0000

I never thought the day would come, when both my children will play with one another. My son who has autism and my daughter who has CRS (Caudal regression Syndrome), two different forms of disabilities, how could they meet in the center and play? At home, they were aware of each other being at home but did not play one on one. I used to sit with both of them and used hand over hand and make them play together. I would always be there helping them play together. Then one day out of the blue he walked to her and sat opposite her took her hands in his and started to sing. She looked at him laughing and trying to sing. It was such a good feeling to see them play together and I did not have to help or be in the middle. All I can say, yes, kids from different worlds and disabilities can play together, all they need is patience and a little help.

I will find a way

Sita — Thu, 09 Jul 2009 15:13:00 +0000

I was having my 4 month ultra sound done when the Dr looked at me and said ” I think there is something wrong”. My heart dropped to the floor but been brave asked what is wrong. Dr said, She might not be able to move from the waist down and needed to do an intensive ultra sound to be sure. Did all the ultra sounds and it all confirmed it. I cried and cried but knew I had to be strong her her. Getting to know all that was to be known about Caudal Regression Syndrome (CRS) and accepting the worse. Thinking of how I am going to do this, having a son who has autism and having a baby with CRS. When I looked at the monitor and just seeing her, I knew I can do this. Scared out of my mind of not knowing what will happen. But when she was born, nothing seemed to matter. Seeing her face for the first time, I knew I can do this.

When she came home, my son became a big brother and keeping a watchful eye on her all the time. I wanted to do everything for her, did not want her to feel any pain. But I knew I had to think with my head and not just my heart. Sitting in front of her and waited for her to figure out a way she has to move to get to me, was the best thing ever. She worked her way to me and I saw that joy in her face of “I did it”. That gave me the courage to let her find her way to do things. And today she has, she has such a will power to do things her way, does not like to be helped unless she really needs it. And she loves her freedom of moving with her cool wheelchair.

I am happy she is who she is and she is not her disability…

Water

Sita — Thu, 09 Jul 2009 02:21:00 +0000

Having got my children to drink more water, I used to buy bottled water so they would think it’s cool to do so. Now wanting to lessen our carbon footprint, decided to to go with the reusable water bottles. I thought I would be going through many reusable water bottles. I was wrong. I am still on the first bottle I got them. My son who has autism, manages to remember to bring his bottle back at the end of each school day. In a way it also have taught him to be a bit more responsible for his things. As for my daughter, she also remembers to bring her bottle home with her. I have to say I am very surprised they have become responsible of their belongings. In my books that is a very good thing.

Diet vs Lifestyle change

Sita — Wed, 08 Jul 2009 01:15:00 +0000

“Diet”, oh that word is so wrong in so many ways. Why should we be on a diet? I cannot understand why don;t we try to be and eat healthy. When I think of Diet and I know x amount of days have to watch what ever goes in my mouth. And then after those days I can eat whatever I want. I am NOT on a diet but I choose to make a lifestyle change. And what I put in my mouth is what I choose to and not anyone else letting me know if I can eat it or not. It is about 2 years I changed the way I think of food and what I choose to eat made a big difference. I know I am on the right path for a better lifestyle for me.
Diet – no thank you
Lifestyle change – yes thank you

Camera in the hands of an Autistic boy

Sita — Fri, 03 Jul 2009 00:07:00 +0000

My son has autism and giving him a camera was the best thing we have done. He has limited speech. He takes photos of what he likes. This really helps with understanding his likes and seeing things through his eyes. It is also interesting to see what catches his attention, and animals are what he love alot.